Sebastian is a 13 year old boy who was diagnosed with Batten CLN8 disease and is quickly deteriorating. He is losing his eye sight, cognitive function, ability to talk, and will die by the age of 20 years old without our help. We have one year to raise 3.5 million dollars for the development and clinical trial of gene therapy, and the treatment of Sebastian and other children. The treatment is so new it isn't covered under insurance. If Sebastian isn't treated within the next year, he will no longer be eligible for the treatment, due to his progressive state. Please join us in our efforts to help save Sebastian's life. Every dollar counts, so please don't hesitate to donate, even if it's $1. Let's help give Sebastian the ultimate healing hug!
* 100% of all donations go to Sebastian & the fight against Batten CLN8 Disease.